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Accessing your own genomic data is a civil right but requires strategies to manage safety
Source: Science Daily
The Genetic Information Nondiscrimination Act of 2008 expanded individuals’ access to genetic information by forcing changes to the HIPAA Privacy Rule. These amendments gave Americans a civil right to obtain copies of their own genetic test results stored at HIPAA-regulated laboratories. Researchers describe how civil rights and safety concerns collided after these changes and offers strategies to reconcile the two.
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